Crohns Disease, The Truth

Lately I've become bitter to the fact that Crohns is not looked at like many other diseases. I understand it's not as talked about as other illnesses, therefore many do not get how it truly effects those who have it.
First let me describe what any given day can be like. Please understand I am not discounting other diseases but I feel this is the best way for others to relate and understand.
On any given day:
It feels like I have had Chemotherapy, yet I was not given an appointment and am not prepared to be nauseated and throwing up.
Maybe today I might have fibromyalgia, my entire body hurts.
Or MS, which body part is actually gonna work?
Vertigo, from anti-nausea medication
Excruciating pain, like labor pains or having kidney stones...up to 6 or 7 times a day.
And of course, chronic fatigue syndrome....all of the above can wear a girl out!

I know intentions of trying to help are heartfelt and comes from goodness, but please don't tell me if I just ate right and exercised that I would feel better. And don't tell me that the reason I'm so sick is just because of what I eat. I've had tests...too many, invasive and more than you'd want...trust me, it's not what I eat. Yes, I am continuing to make steps towards better eating, seeing a nutritionist to help. But it's very discouraging that while eating exactly what I know my stomach handles and still it doesn't even stay long enough to give me any nutrients or energy...then fatigue sets in again. Trust me if I could trust my body to go for a walk I would, but most walks do not include bathrooms at the exact time I need them and I won't go into the humiliation of  possibilities when a bathroom is scarce.

Don't get me started on not being able to eat salad or other veggies.....miss them so much. If cooked to mush or puréed, then I can eat them.

I am now working on my second treatment...the first quit working. If a treatment works, remission is possible, but only for a while. Symptoms will come back and it will start all over. This is life long, there is no cure.

I AM lucky, I count my blessings.... I still have my colon, I don't have a bag...many others aren't. I feel I have the discipline to continue to be proactive, eat right and do all I can to not get to that point. But I feel it may be inevitable. But that's Gods plan.

Lastly, I ask, if you don't understand, ask or research, don't assume! But also, if you have the choice to vote to legalize cannabis (oil in pill form) please do it. Research shows major, huge relief and remission for those who suffer with this way worse than I do. People who had feeding tubes and couldn't walk, now eat and walk. Seems like this is the miracle medication. We don't want the high, we want to be better.

So, this is my explanation of how Crohns effects my life. It's not easy, but the worst part is others not knowing enough about how we suffer. It's a silent disease, we look fine on the outside but our insides tell a completely different story.